Frustrated Rant

I'm frustrated and in huge amounts of pain that my pain meds and the heating pad I'm using can't help. I've been in the ER twice this week for the pain and that didn't help figure anything out, just helped treat some of the pain I was in *sighs* :/

So, today, I called and made a follow up appointment with my GI doctor for March, and I'm hoping that when I go the stool sample that I have done will help to tell some of what is going on and also that we can do another colonoscopy and endoscopy, because I'm thinking since May of 2013 my body went from showing visible colitis to having microscopic colitis. So, I'm hoping my GI doctor can find out in March if that is what is what is what is going on and that is why I'm in huge amounts of pain *sighs* :/

Also something else that bugs me, is that the ER doctor prescribed me Bentyl and they know I have colitis and I take Apriso for it, so why would you prescribe me that? Then on top of that I tell you that I have taken it in the past before I was diagnosed with colitis and it didn't help me and made me worse when they that I had IBS *sighs* :/

Not to mention I looked up on my phone at the ER that Bentyl shouldn't be given to those that have colitis *sighs* :/

What is wrong with doctors?

GI doctor update - December 8, 2015

He only got the records from one of my previous GI doctors so far :/ So, he has to try and get the records from the other GI doctor again :/ He is going to keep my meds the same right now. He wants me to do a stool sample for him this week *sighs* I hate doing those :( But hoping it helps shows what is going on since the CT scan last week at the ER didn't show what was going on :( He wants me to come back and see him again in March. I lost two pounds in the six weeks since I last saw him so I went from 242 to 240 now. Not sure how that happened since I'm not trying to lose weight right now. I think it is my colitis making my weight come off right now, but no complaints.

I hate that my colon had me up in severe pain all night last night and today. None of my meds are working to bring down my pain and control it and that sucks. Why does colitis pain have to be so painful and hard to control?

New GI doctor visit today - Update

Had a visit with a new GI doctor today and it went good. Go back to see him on 12/8/15. Hoping we can figure out what to do about the colitis pain and how to calm it down, that way I can enjoy life a bit more then I am right now. Because right now being in severe pain, it is hard to enjoy daily life, because it is hard to get out of bed with the pain I'm in everyday. Will keep you all updated as I can.

But so, far I think I'm going to do well with this new GI doctor, so I'm hoping things continue to go well.

I also weighed in at 242 lbs. Which is surprising because I feel like I should weigh more then that, but then again, I am lucky to eat, because of my colitis :/ So, I guess I shouldn't be that surprised.

Afraid and in pain and confused about my upcoming GI doctor about on 11/9/15

I see my new GI doctor on the 9th of November and I'm afraid if they press on my stomach I'm going to scream and what their reaction will be at that point :/ Has that happened to anyone and if so what happened? What did the doctor do? Did they make you an appointment for an colonoscopy/endoscopy ASAP or did they send you to the hospital and admit you, right away???

Yay I get to see a new GI doctor in November 2015 - Update

Well, after not having a GI doctor for about a year I finally have good news. I got a referral to one and get to have an office visit with them on November 9, 2015.

I'm hoping they will work with me and do a new colonoscopy and endoscopy and this time get biopsies because my last GI doctor didn't do that during the procedure and that is part of his job even if everything looks good *rolls eyes* knowing I'm in constant pain still on my lower left side and having new lower right sided pain as of October 2014, should mean even if things look good, you take biopsies, right? I'm also hoping that the new GI doctor will change my meds, because my current medicine Apriso doesn't seem to be controlling all my symptoms and making things worse lately *sighs*

I also don't know if it is a good or bad thing that my colon pain is up to the point that breathing is killing me, not to mention walking or bending over. So, I can just imagine that if I went to my new GI doctor today and they pressed on my colon to check things out, that I would most likely scream out loud in pain. Which is not like me when I get checked out, I normally am in just enough pain to where I just end up wincing in pain when they press on my colon to check things out.

As of September 17, 2015, when I got in a tiny fender bender and ended up dealing with a tiny bit extra lower right sided stomach pain then normal and not being able to lay on my right side, I'm still as of today unable to lay on my right side, because of the pain.

Got to call the doctor in the morning...

To tell him that I really need him to focus on getting me a new GI doctor so that I can find out what is going on in my colon on the lower right sided part of my body that has been going on since last Octoberish, and is getting worse, to the point, I am now weak and almost throwing up and passing out and eating less then the one meal a day that I do a day that I can get in if I'm lucky to eat :(

I also haven't had a BM since July 3, 2015, at 4:53pm and it was loose and black, tarry looking *sighs* So, really, not sure what is going on with that either :/ I have been taking my colitis med Apriso everyday like I am supposed to *sighs*

My night in the ER tonight...

I love how my body goes from giving me an ovarian cyst at the beginning of June, to having none as of now, and yet, still being constant pain, like I still have the ovarian cysts, then feeling like they ruptured this week, and almost passing out today, so ending up in the ER for seven hours tonight only to get everything ruled out that they can't find out what is causing the pain :(

So, now on Monday, I am going to have to call my Primary doctor and push him to call and get him to refer me to a new GI doctor, so that I can go get checked out and get a colonoscopy again and see what is going on in the lower right hand side of my colon, that is causing the constant pain that hasn't gone away for months on end :(

I already know, that my colts med needs to be changed because it doesn't totally help my colitis out, but my last GI doctor didn't listen to me about things *sighs* So, hopefully the new GI will figure out what is going on with my colon and figure out a med that actually helps me out *sighs*

Update on my next colonoscopy and endoscopy date

My arm is bruised in a few places, because of where they tried to get to a couple of my veins yesterday. 

I ended up calling my GI doctor's office this afternoon, since I hadn't heard about when my procedure was going to be rescheduled for yet. 

My new colonoscopy and endoscopy date is set up for February 27, 2015 and I have to arrive at the hospital at 8:30 am. 

I'm hoping since, it is going to be at the hospital this time that they can find a vein on me, since they can use the help of a machine, if they need the extra help. Because if they can't find one and I have to redo the preparations again, I'm going to be really pissed off more, then I was yesterday.

I will keep you all updated on how things go this time from preparing for my procedure, to having it done and the results of it.

My GI doctor is finally working with me!!!

When I first started seeing him, he didn't seem like he was wanting to work with me or believe that I really have colitis, but now after going to the ER last year in October or November and him laughing it off and not wanting to do a follow up appointment for me, he seems to have changed since I was in the ER again yesterday for my current colitis flare up and I had a follow up appointment today with him, where he actually listened to what has been going on lately and realizing that stuff has changed since my last GI doctors in VA. So, he set me up a colonoscopy and endoscopy for the 12th of February to see what is going on himself instead of just going off of what my last GI doctors have in my chart about what they found out.

2/3/15 - ER visit

Intense pain from Align the probiotic :(

My GI doctor gave me Align the probiotic to try, but I tried it one day and it intensified my pain from the normal 5 to 3 where it usually hoovers all day to a 10 and above and to the point that I was going to have my boyfriend take me to the ER to bring it down.

Has anyone else dealt with that after taking a probiotic???

I'm afride to take it again because I don't want the intense pain again :(

What would you do? Would you take it again and see if it was just a one time thing or would you avoid taking it again at all costs?

2nd visit to me GI doctor in NC

Today was my 6 month follow up (aka 2nd visit) to my new GI doctor in North Carolina and I updated him that I was still having the same constant pain and gotten sick a few times and dealing with constant bloating as well as the constipation pain, even though I have constant diarrhea so I know I'm not constipated.

He still isn't sure what is going on, but nonetheless since I do have colitis, he renewed my refills on my colitis meds and then gave me a sample of align to try and said that it would be ok for me to try diatomaceous earth when my boyfriend brought that up. He wants to see me in three months and see if things have changed for the better or worse, so I will be keeping track with my GI app still as well as letting you all know how things go on here.

I'm nervous about trying the align and diatomaceous earth, but am going to do my best and be optimistic about them working, because I hate being in constant pain.